Tag: aldosteronism

  • The start of something new

    First, thank you—whether you found this page because you’ve read Misdiagnosed for Miles, you’re curious about my journey, or you just stumbled across it—I’m so glad you’re here.

    This blog is an extension of the story I told in my book, and as I sit here reflecting, I can’t believe it’s been nearly a year and a half since my successful adrenalectomy—the second of two major surgeries that defined my 2023.

    If you haven’t read the book, here’s the short version: I spent over 17 years battling brutal symptoms—chronic headaches, crisis-level high blood pressure, heart palpitations, extreme edema (among other issues)—and no one could figure out why. I saw countless doctors over the years, and while some ran tests and genuinely tried to help, they were focused on the wrong things. I was misdiagnosed (or brushed off in some cases) over and over again.

    In 2023, I was finally diagnosed with primary hyperaldosteronism, a rare condition caused by an adrenal tumor that throws your entire system out of whack. I had surgery to remove the tumor in October—and everything changed.

    (more…)